Ed S.
I know exactly what you're going through. I have been suffering from kidney stones for the last 11 years, and I just recently found out I have this disease. I've been told the same thing numerous times; that the pain can't be from my kidney when they don't see any obstruction. Unfortunately I have had several spiral CT's and this is how I found out I had a sponge kidney,BUT, it didn't show any obstructions, so once again, they said I shouldn't be having pain. I am going to see a specialist in Boston, and he is supposed to be the foremost expert on renal disease in this area. Hopefully he will have some answers for me that will be a step closer to a solution. I will let you know what happens if you're interested. Please reply by e-mail if you would like to discuss this further. I am as frustrated as you I'm sure, and it would be nice to hear from someone else in the same boat as I'm in. Good luck!