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medullary sponge kidney:unanswered questions

Tammy

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I have read through all these messages and basically we are all going through the same pain and unanswered questions. There is alot of pain on my right side, i constantly have blood in my urine, and i pass alot of stones. The doctors tell me the pain does not stem from the kidney but I have never had a spiral catscan done. I feel as if the doctors don't know what to do with me. any help?
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