Annie
I just got this for the first time about 4 weeks ago and have been taking SSKI for 3 weeks. It has not helped me so far. However I am going to see a dermatologist as soon as my referral comes through. Have you had any pulmonary problems from it - fluid in the lungs, shortness of breath, etc.???? It is really painful as you say, which no one told me. I thought I was crazy with all these aches until I looked it up on the internet. Please let me know how you're doing and I will let you know anything new I find out.