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henoch schonlein purpura

Susie in Idaho

Message 9 of 10 Previous Next



I cried while reading about your daughter. My son has battled HSP for 16 months, he nearly died twice, had telescoping bowel surgery etc. caused by this awful disease, spent 3 weeks in the hospital and had to be lifeflighted to a bigger hospital after nearly bleeding to death. His urine is never clear of blood and almost always has protein, had the purpura rash flare up again in Oct. and went away in April. Now it is back again, I'm so scared. The unknown is scary, I pray for those who are afflicted with HSP.

 


   
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