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Raynauds? fingertips numb with pain

stellajo/joanne

Message 17 of 23 Previous Next



hi, I can truely understand what your daugther is going thru. I was zapped with it about 5yrs ago. all i can tell you is find good doctors. in the mean time buy a couple of pairs of cheap winter gloves and cut off the fingertips. I wore those for several years. regarding your feet you can buy some products for footwear. Some are good and some are ok.... After about 3yrs. i changed my doctors, I was noticting other things popping up. Have your doctor do a ANA test, TILT test, of couse blood test! most people who have rayaunds have an underlying diease that goes with it. I was on cardura & flornif and that combination worked for me. It is just a matter of medical roulette to find the combination. I don't know where you live? but,if you look on websites for rayaunds, and their is one out there,I just forgot the url? do alot of research and have questions when you see your doctor next time. In the begining i could not do anything, my doctors here didn't really help me. so my hubby and I went to Mayo clinic twice I had every test you could think of. Mayo's told me that I had Fibro. too! they sort of put me & my hubby in a informational support group for Rayaunds/FMS. In order to keep your hands warm wear alot of clothing: layering yourself, because your whole body feels like an ice cube on the outside. I know that it's hard to do anything, and you just want to stay warm. I started to do a little yoga even with my gloves. Get a good support system. take care- and you can e-mail me anytime. find a heathclub that has a warm water pool just for "special people" like us. You'll be find! Take hot showers in the mornings too! Everybody is differece so what worked for me may or may not work for you. Interview your doctors first! Most of them really don't have a clue about treating rayaunds or any other autoimmun dieaases.

 


   
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