Luci
                    
                    
                    
                    
                    
                    
                    
                        
                        
                        Good luck with your second opinion.  Do not give up.  If you have to travel to have a good dr. do your surgery I would do it.  Reseach doctors on the internet.  I traveled 5 hours to have mine done and it was worth it.  I will keep you in my prayers.  Feel free to e-mail me. I also had/have acmw/syringo.  Looseegoos@aol.com