to Eileen
                    
                    
                    
                    
                    
                    
                    
                        
                        
                        Eileen, I hope that you have contacted the Achromatopsia Network.  It has helped us a great deal and will provide you with not only info, but you can meet others that are going through the same things or can give you some advice.  I am a member and would love to be of some support .                             Misty